ALS: THE INTERVIEW PRESENTS RICH MACKNEY! (PART 3 OF 3)
Manning: Rich, at the end of each interview, I ask my guests if they would like to summarize their appearance by making any point they want. I know you're continuing every day to be active and not passive with the ALS. The floor is yours!
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Mackney: Michael, when you first hear somebody tell you that you've been diagnosed with a terminal illness, and you ought to go home and prepare with your family to die, it's a shock to your system. You'll find that there are fighters or a run-awayer's. In my experience, if you're not going to stand and fight, you're only going to hasten your demise. I also understand that there are probably fewer fighters out there than there are people resigned to their fate. And so I think, on the one hand, I'm glad I'm like me. I want to fight. You can never do that looking the other way and beat this disease. But in addition, I want to continue sharing information with all the many people out there who are not necessarily fighting--to give them some hope, understanding that this is not standing still. It's moving---slowly---but it's moving. If the last 12 months is any indication, the next 2 or 3 years will see us moving ahead by leaps and bounds. We just need to hang in there for the ride. We do everything we can to stay hanging on.
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Manning: Is there anything my readers can do to help push things forward beyond a letter to a Congressman or Representative?
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Mackney: I think it's very simple. If you would be kind enough to point your readers to my BLOG, so they can stop and see the research I post there...
Manning: Yes!-
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Mackney: ..They will find opportunities not only for ALS, but how this technology touches so many other things. If your readers find something that is interesting to them for their family, for their loved ones, then I think it would be great if we opened up communication with their legislators and point them to the same research and ask the question: 'What are you doing to see that this comes faster in our lifetime for my loved one who has Cancer? ...or my loved one who has Parkinson's disease? ...or my loved one who has kidney failure? ...or my loved one who has a busted spinal cord?' I think that if the approach is multi-variable as that it will have a bigger impact, because then it's not one person with one disease who is screaming into the wind. It's a whole bunch of people saying this one technology--this stem cell technology is capable of fixing a whole range of diseases and illnesses. 'What are you doing, Mr. Representative to make sure that this government makes sure to bring this care to me and my family sooner than later?' I want to thank you for giving me this opportunity to share my story and my thoughts with you and your readers.
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Manning: Thank you, Rich.-
Note from Michael: I have learned many lessons from my incredible friend Rich Mackney. Among them, I've learned to be more patient and diplomatic--which hopefully makes me a better Gentleman! But I've also experienced in Rich a Generosity and Kindness towards mankind balanced by the Mental Toughness, Courage and Dedication required to fight Lou Gehrig's Disease. I am very grateful to Rich for making this interview possible. Here is an important piece of information, as I know many of you reading this interview worldwide will want to remain in touch with Rich's progress:
Website Contact for The Rich Mackney Warriors:
http://themackneywarriors.wordpress.com
This is a GREAT way to stay in touch with Rich!
http://themackneywarriors.wordpress.com
This is a GREAT way to stay in touch with Rich!
Together we can win the fight against Lou Gehrig's Disease!
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11 Comments:
Excellent, thorough, and heartwarming interview. Love his t-shirt saying about hope. (My painting "The Power of Hope" is in the permanent collection of healing art. Hope IS a powerful feeling.)
I'm heading on over to Rich's blog now and like he said, encourage others to do so. WONDERFUL interview, Michael!
This was a beautiful three part post Michael.
I am sure that the admiration and a kindness that you feel towards Rich is returned with the same token back to you.
Zuzana
He sounds like a wonderful and brave man, thanks for sharing some of his story, Michael. I like what he said about fighting; we never know how we'll respond if we are given such news.
Gel: Thank you for such a nice note!:)
Zuzana: Thank you for those kind words! I am merely one of MANY friends who is a "Mackney Warrior"! :)
Sage: I agree and I support Rich 100%. :)
how you want to live your life is very important. that rich has chosen to fight is the right decision for him- and i wish him best wishes and all the luck in the world.
great interview, michael.
There are those who lay down and wait for the inevitable and those who stand and fight who live forever.
Rich is one of those people who is not only a survivor but a person hacking their forward for the rest to follow with ease.
Great interview
Seraphine: Thank you for writing. I am absolutely convinced my friend Rich is on the right course and not coincidentally, it is the same course of action I would take! :)
Walker: I must tell you. I read and re-read your message because it is written with words of Iron, my friend! Rich is most definitely a Leader and his Determination is vital. He is a Positive example to me and thousands of others! Thank you for writing! :)
As a former coworker with Rich, I check his blog often, but just found this series of interviews. I have kept in touch with Rich and Ilana periodically over the last several months and have been so impressed with his positive attitude of fighting this now, thanks to him, hopefully solvable disease. I, too, consider myself a Mackney Warrior, but not to the extent you are Michael. Thanks for sharing Rich's story and battle with the world. Maryanna
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